Wednesday, January 14, 2015

Still hanging around...

I'm sure by now many of you are curious as to my status. Since it's been nearly two months since my last post, I am writing this one under the premise that "absence makes the heart grow fonder".

Well, I'm still trying to "kick" cancer in the butt but the past month or so I've been pretty "low" one could say — no pep, no energy, feeling generally awful. My last chemo infusion was Dec. 17. Barb took me in last Wed., Jan 7 for my "routine" appointment of blood test, doctor visit and chemo ... but I was too weak. I told Angelique - the "human" oncologist assisting Dr. Yee - that earlier in the morning the very idea of going to the doctor's appointment was abhorrent to me. It was the first time in all my trips to the Cancer Institute that I felt "sick" about going through all the "ritual" another time.

I turns out my blood test showed that my hemoglobin and other blood quality markers were so low that I didn't have to advocate to skip chem. I was too sick and they put me in a chair for a blood transfusion of two units (350 ml each) of new blood. This was very time consuming but it sure did give me a much-needed boost. I also had two units of blood with my last chemo on Dec. 17.

Incidentally, I inquired why they call it a "transfusion" when no blood is taken out of me. They simply "topped me off" with an "infusion" of two units. The nurse agreed the term transfusion means take out and put in or "replace" but the term "transfusion" is also used for "infusion"???? This conundrum is up there with some other ones I have like "sea salt". Isn't ALL salt — including Morton't mined in Kansas — from the sea?

I asked for no chemo for a month so see if I can maintain more strength and well-being. Dr. Yee agreed I should plan to return Feb. 7 for blood test and to see if more therapy is viable.

I was asked the "are you depressed?" question last week which I said there are times when I am very discouraged. They also asked if I have lost interest in doing things. That is a definite "no". I have lots of things I want to do. The problem is I don't get much done in a day except keep holding down the toilet so it doesn't fly away. I also rest a fair amount which I credit helping me from getting any other flu, cold, pneumonia or other bugs of which there is an abundant amount flying around this winter here in PA. The "sharing time" at church last week was a long list of sick people. I am thankful that Barb and I both have avoided the flu pandemic... thus far anyway.

That's enough about my status. I am attaching our Season's Greetings for more about 2014 if you are interested. It was a year with some big "landmarks" - including keeping the Grim Reaper out of the house.

Peace.  Joy.  Love.
Our Wishes For You In 2015
January 2015
Dear Family and Friends,
This Seasons Greeting is either very tardy or very early. We are not sure which, so the decision is up to you. Maybe some of you will award a prize for both. (Special thanks to Wal-Mart for telling us what should take one day would be 2-1/2 weeks to get the prints and then, in the end, losing the order.)
Welcome to the Schrag’s Deal with the Real “2014-going-on-2015” letter. We have enjoyed letters and cards from so many of you. Thanks for keeping us on your list.  We trust that this update finds you and your families filled with memories of 2014 and optimistic about 2015.

Where in the world are the Schrags and what are they doing?
Barb and Ricky continue to live in Akron, PA. On Nov. 14, Ricky retired from Smilebuilderz LLC in Lancaster where he worked as a billing specialist.  After 15 years with Mennonite Central Committee, most recently as the Associate Director for Donor Relations, Barb took a new position with Mennonite Disaster Service as the Volunteer Development Team Leader.
Adam, Annie (Schmidt) and Owen (age 16 months) live in Fresno, Calif. Adam teaches in the Communications Dept. at Fresno Pacific University. Annie recently took a new position as the Development Manager for the Fresno Philharmonic.
Charles lives in Seattle, Wash., where he works for Catholic Community Services of Western Washington (CCSWW) as a Housing Case Manager for homeless men. His friend, Anna Harrington, is a Research Coordinator at the University of Washington.

What have Barb and Ricky been up to?

We started 2014 by ending a long era of mini-van ownership and purchased an SUV.
In March, we celebrated 41 years of marriage with a trip to Fresno, Calif., and Yosemite, visiting Adam, Annie, and Owen, as well as other friends living there.
Throughout the year Ricky had CT scans, chemotherapy and too numerous to tell doctor appointments related to his war on pancreatic cancer.
Family photo taken during the Fathers Day surprise trip. We had a blast! We are, l-r, Owen's mom, Annie Schmidt, and dad, Adam from Fresno, CA, Grandbee Schrag holding Owen (9 months at the time), "Pop-pop" Schrag, Charles Schrag and his special friend, Anna Harrington from Seattle. Wash. At this point Owen is heavy into "baby talk".
In June Barb gave Ricky a Fathers Day surprise — she successfully made a trip to the Philadelphia airport to pick up Adam and Charles along with Annie, Owen and Anna. They quietly snuck into the house while he was occupied in the bathroom. Unsuspecting of anything suspicious he was delighted with this Fathers Day gift.
A late summer road trip took us to Minneapolis, Freeman, SD, and Cass Lake, Minnesota. Owen, his parents and his dad’s brother were able to join us for parts of the trip. Everyone had a great time visiting extended family and friends.
A most unfortunate incident happened in Cass Lake when Ricky fell over a boat hitch and broke his back (3rd vertebrae). This only served to compound his health woes and eventually led to a week of hospitalization for complications from the broken back, internal bleeding from duodenal ulcers, an internal infection and low functioning kidneys, all complicated by a mass on the pancreas.  For those familiar with the TV show House, the week’s events could have easily been been a House script. “What else?” the attending Dr. shouted to the resident in training. “And how are you going to treat that? Next?”
In October, Ricky’s brothers, Reed from Freeman, SD, and John, from Santa Fe, NM, came to Akron to keep him company during one of Barb’s trips out of town for meetings. The following month Charles did the same while Barb was away.
On Dec. 5 we hosted (Barb executes, Ricky enjoys) a “Kickin’ Cancer” Open House in observance of Ricky surviving three years with pancreatic cancer. And to show appreciation for all the support given to us from our work and church communities. It was a huge success with about 80 friends attending. They enjoyed appetizers, punch, and each other’s company. Throughout the evening, we heard “So how do you know the Schrags?”  It was fun listening to the responses.
Here is a family "selfie" Adam set up with a tripod and timer feature. Notice my teeth are hiding. But I am very happy. Owen is 15 months old and very verbal and walking also. We enjoyed his (mostly) happy spirit and whimsical personality. 

Owen loved to go outside no matter how cold the temperature.
He loves scanning the sky for the moon and
really lifted our spirits with his pleasant and happy nature.
We ended 2014 and started 2015 with another great visit from Owen and a few of his closest friends and relatives.  It was a treat to have them in PA. We enjoyed hearing his new words; moon, pop-pop, meow and kitty and watching him gain his independence through walking. We cooked, played games and in general cherished every minute together.

As DEAL with the REAL continues into 2015, we are grateful for your support. Not only because Ricky has cancer but because we know you care about us. On December 24, 2011, Ricky started his blog with:

Here's the deal....
                                                    
After several weeks of procrastinating I've decided the smart thing is to start blogging as a means of communicating with my family and friends about my situation. I never gave much thought to having my own journal for anyone to read.

The blog post ended with “Best personal wishes at Christmas and throughout the New Year.” We extend those same wishes again to all of you for 2015.


Barb and Rick